I still can't believe we're in NYC!!! Somebody pinch me and wake me up!
Matthew is napping as I type. He had quite a morning. We arrived at the hospital at 7 a.m. and met with Dr. Wexler for Matthew to sign all the necessary legal documents to take part in the clinical trial. He, then, escorted us downstairs to the imaging center for his scans. Yes, I said that the doctor, the best in his field in the country, escorted us to Matthew's scan location. We had a wonderful conversation all the way there.
Then, Matthew started his delightful adventure of drinking about a quart of foul, thick stuff for his Petscan which took 2 hrs to complete. Then, he was given another quart of another absolutely awful concoction to drink for the CT scan. All this on an empty stomach, of course. Scans were completed by 1 p.m. afterwhich Matthew went for a burger and fries!!
Dr. Wexler has called twice since we have returned with numbers to the Corporate Angels for us to contact about flights for Matthew's weekly treatments. Hopefully, we can work out something. After 6 wks, new scans will be done to see if the treatments are working. Then, treatments will continue (weekly) for another 6 wks, then scans and so on in 6 wk intervals. So, we will be able to know where we stand pretty quickly.We have to be at the hospital at 9 am Monday for his initial treatment, additional bloodwork, EKG's and other initial tests that need to be done. Should be done by @ 1 pm.
Greg just came in and gave me news of another of God's miracles today. He called Delta about Matthew's and my flights that are supposed to leave with Greg on Mon @ 4:30 p.m. Greg explained the situation and that we didn't know when Matthew and I would be flying out. The person he spoke to immediately said, "Well, you have enough to deal with at this point. I will put a note on these tickets that they are "open" until you need them and there will be NO fee." OK, are you believing in miracles out there??? No doubt!!
Ian will arrive in early evening. We look forward to a fun weekend. Probably won't hear from me for a couple of days (unless I find a great deal at one the stores here! Ha!) Love to all, Nancy